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It is reported that the thesis section is available, to publish abstracts of postgraduate theses in the disciplinary field. Who submits your thesis, must present the title, abstract, key words (include Occupational Therapy), and a summary of 2 to 3 pages of your thesis. And `present it in Spanish, English and / or Portuguese.

Experiences of family caregivers of children and adolescents with cancer

Authors

  • Iêda Cristina Batista da Silva Universidade Federal da Paraíba
  • Márcia Maria Mont’ Alverne de Barros Departamento de Terapia Ocupacional da Universidade Federal da Paraíba
Vol. 19 No. 1 (2019): Junio
https://doi.org/10.5354/0719-5346.2019.49807

Abstract

This is a descriptive-exploratory study, with a qualitative approach, carried out at the Support Center for Child and Adolescent with Cancer, in João Pessoa, Paraíba. It aimed to know the experiences of family caregivers of children and adolescents with cancer. Eight caregivers residing in different municipalities of the state participated in the study. A semistructured interview was used as a data collection instrument, carried out in February and March of 2018. The analysis of the collected material was performed through the analysis of thematic content. The study obeyed Resolution 466/12 of the National Health Council. The findings revealed the emergence of three main categories: Category 1: women caregivers report changes in their life routines after family members started cancer treatment; Category 2: main difficulties faced by caregivers in the process of caring for the child and adolescent with cancer and Category 3: strategies for the promotion of mental health of carers of children and adolescents with cancer. It was identified that family caregivers present demands for care, since multiple aspects of their lives have undergone significant changes since the beginning of treatment of their relatives with cancer. Caregivers face difficulties in the physical, psychological and financial dimensions, correlated to the care process provided, among other important aspects.

Keywords:

Experiences, Family, caregivers, cancer, child, occupational therapy.

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How to Cite
Silva, I. C. B. da, & Mont’ Alverne de Barros, M. M. (2019). Experiences of family caregivers of children and adolescents with cancer. Revista Chilena De Terapia Ocupacional, 19(1), 35–48. https://doi.org/10.5354/0719-5346.2019.49807
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Revista Chilena de Terapia Ocupacional
Facultad de Medicina
Universidad de Chile
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